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treatments but this is the life we have chosen and we love it. We cannot imagine doing anything else. It is not easy and it is certainly not for everyone, but it is perfect for us. Our children all started out as micro preemies from their pre natal exposure to drugs and alcohol. Their birth weights ranged from 21 ounces to 2 1/2 pounds. They were born at 23, 24 and 26 weeks. Shawnee was 12 in June and can now propel his own wheel chair and is beginning to use a walker. He just graduated from 5th grade and will enter middle school next year. He is, as are his sisters, in Special Education. Kenya will be 12 in July and attends a special school for children too medically fragile to attend regular schools. She has a trach, feeding tube, is oxygen dependent, legally blind and 90% deaf. But she is a little clown. I think she is planning to be the 2nd Houdini. Kimberly is 10 1/2 and we were told she would only live a few months when she was born. God and Kimberly had other plans. She has a feeding tube, is legally blind, has sleep apnea, has Hydrocephalus and Microcephaly and is on oxygen prn. She is the happiest child I have ever met. She jabbers all the time even though we rarely understand anything she is saying. I call her my "heartbeat". Her first real words were "my mama".
We are now adopting Colton (we call him EZ because he is so easy to love). He was 2 on Easter Sunday and has Hydrocephalus, Microcephaly, a Trach, is on oxygen, has a feeding tube, is legally blind and like all the others is confined to a wheel chair. He sleeps most of the time but when he hears my voice and feels me touching his face and kissing him, he wakes up because he knows mama is there.
We travel in a 38' motor home towing a 12' trailer in order
to carry all the wheel chairs, love the lights, sounds, characters, etc. We have given and received medical supplies and equipment from other families on this web site and we think it is the greatest source of information and help on the internet. Judy & Ken Hammett krhammett@aol.com
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